QUANTUM

Data users (i.e., researchers, innovators, regulation agencies and policy-makers) need high-quality data. In HealthData@EU, data holders are expected to make their datasets available for secondary use, providing a notion of their quality and utility and the maturity of their data quality procedures. In article 56 in the HealthData@EU proposed regulation, this notion would take the form of a label.

Overall, QUANTUM aims at developing and implementing a label mechanism that could be ideally adopted in the future HealthData@EU.

QUANTUM builds on 5 technical work packages (WP). WP1 conceptualises and provides technical specifications for a data quality, utility and maturity label. WP” designs and tests, at small-scale, the label. WP3 implements the labelling mechanism in a number of data holders. WP4 engages the data quality users’ community; and WP5 outreaches other interested parties, including other initiatives building HealthData@EU.

Expected results: a) A common concept of datasets quality and Utility and Data holders’ Maturity; b) Technical specifications for the label (Deliverable D1.1. and D1.2.); c) A conformance checking tool that yields the label (D2.1); d) An implementation report of the label mechanism (D3.1); e) Recommendations for a large-scale implementation of the QUANTUM label mechanism (D3.2); and f) The QUANTUM Exchange Platform and Academy (D4.2 and D4.3) as instruments for capacity building.

Consortium: For this purpose, 28 beneficiaries, 11 affiliated entities and 1 associated partner. The composition of the Consortium seeks to reflect the different roles and institutions in the governance of the HealthData@EU; virtually consider all types of data and science of interest; and gather the expertise of previous outstanding projects in the domain.

European Commission (hHorizon Europe Programme)

€3.999.965,00

€32.102,50

SEP-210936659

30 months

Ricardo Correia (PI), João Fonseca, Pedro Pereira Rodrigues, Alberto Freitas, Cristina Santos, Tiago Taveira-Gomes

https://sigarra.up.pt/fmup/pt/PROJECTOS_GERAL.MOSTRA_PROJECTO?p_id=81279